The European Blood and Marrow Transplantation Textbook for Nurses: Under the Auspices of EBMT

This textbook, endorsed by the European Society for Blood and Marrow Transplantation (EBMT), provides adult and paediatric nurses with a full and informative guide covering all aspects of transplant nursing, from basic principles to advanced concepts. It takes the reader on a journey through the history of transplant nursing, including essential and progressive elements to help nurses improve their knowledge and benefit the patient experience, as well as a comprehensive introduction to research and auditing methods. This new volume specifically intended for nurses, complements the ESH-EBMT reference title, a popular educational resource originally developed in 2003 for physicians to accompany an annual training course also serving as an educational tool in its own right. This title is designed to develop the knowledge of nurses in transplantation. It is the first book of its kind specifically targeted at nurses in this specialist field and acknowledges the valuable contribution that nursing makes in this area. This volume presents information that is essential for the education of nurses new to transplantation, while also offering a valuable resource for more experienced nurses who wish to update their knowledge

Living with multiple myeloma: A focus group study of unmet needs and preferences for survivorship care

Purpose: To describe the unmet informational, psychological, emotional, social, practical, and physical needs and preferences for posttreatment survivorship care of individuals living with multiple myeloma to inform the development of relevant, personcentered, survivorship services. Methods: An exploratory, descriptive study using 2 focus groups with 14 participants, 6 to 49 months postdiagnosis. Results: Thematic analysis revealed 7 key themes: information needs, experience with health-care professionals, coping with side effects, communicating with family and friends, dealing with emotions, support needs, and living with the chronicity of myeloma. Participants described key characteristics of survivorship care relevant to their needs and indicated they would like a more whole of person approach to follow-up when the main treatment phases had completed. Conclusion: Participants in this study described unmet needs across a breadth of domains that varied over time. The development of flexible, person-centered approaches to comprehensive survivorship care is needed to address the considerable quality-of-life issues experienced by people living with multiple myeloma. Nurse-led care may offer 1 viable model to deliver enhanced patient experience—providing the vital “link” that people described as missing from their survivorship care

Post-Operative Nursing Care of the Renal Transplant Patient

Abstract Kidneys are the most commonly transplanted organ in the United States. All patients who receive a renal transplant must be on lifelong immunosuppressants to prevent rejection of the donor organ. The majority of patients do not take their immunosuppressant medications as instructed, making noncompliance a huge issue for medical professionals. The purpose of this literature review is to explore what evidence-based techniques nurses should employ to increase the long-term compliance of immunosuppressants in renal transplant patients. A literature review was performed of fifteen studies to identify interventions that nurses can employ to increase immunosuppressant compliance. CINAL and Medline were searched using Boolean phrases, and studies were sorted using search limiters and inclusion and exclusion criteria. All studies included in this literature review are peer-reviewed academic journals. Nurses can assess motivating factors and barriers to learning prior to teaching renal transplant patients about immunosuppressant therapy using evidence-based tools and questionaries. While teaching, nurses should promote self-advocacy and accountability to prevent both intentional and unintentional non-compliance to long-term immunosuppressant medications. Increased compliance can be achieved with the use of mHealth applications and the SystemsCHANGE approach. Intentional non-compliance can be reduced with thorough teaching of correct medication use, side effects, and results of noncompliance. Nurses can use individualized assessments, tools, and technology to increase immunosuppressant compliance and decrease long term complications associated with noncompliance. Future research regarding compliance with immunosuppressants is needed to provide nurses with evidence-based interventions, and quantitative longitudinal studies could provide insight to the effects of interventions long term

Compassion Satisfaction, Burnout, and Secondary Traumatic Stress Among Heart Transplant Nurses in a Hospital Setting

Abstract Purpose: The purpose of this study was to assess whether or not, and the degree to which compassion satisfaction (CS), burnout (BO), and secondary traumatic stress (STS) are present among inpatient acute-care heart transplant nurses. Perceived presence of other contributing factors that contributed to CS, BO, and STS was also assessed. Design: A cross-sectional survey-based mixed methods study with an explanatory sequential design was used to assess baseline levels of CS, BO, and STS and identify any other factors at work or home that may impact these constructs. Methods: A Qualtrics survey was sent to potential participants. A convenience sample of 40 heart transplant nurses completed the survey. A one-way ANOVA was utilized to analyze quantitative study results, while qualitative data was analyzed using a qualitative descriptive approach. Findings: No significant correlations were found between total nursing experience, CS, and STS. However, BO levels and total nursing experience was found to be significantly different in those with nursing experience of 3-6 years and 7-10 years. Nurses with 16+ years of heart transplant experience have higher overall CS scores than those with less experience. Qualitative responses identified 58 factors that impact CS, BO, and STS. Sixty-two percent of the factors noted by participants were negative work-related factors (n=36), 6% were positive work-related factors (n=4), 19% were negative home-related factors (n=11), and 12% were positive home-related factors (n=7). Conclusion: Heart transplant nurses experience greater levels of burnout after working for 7-10 years and nurses with 16+ years’ experience greater levels of CS. Keywords: transplant, heart transplant, compassion satisfaction, burnout, secondary traumatic stress, nursing, nurs

Trasplante de órganos y tejidos: responsabilidades de las enfermeras

In Brazil, more than 30,000 patients are awaiting organ transplantation. The complexity of this therapeutic treatment requires specialized training and constant involvement from health care providers involved in care for these patients. In everyday practice, nurses are challenged to provide high-quality care to patients and families. In view of the need to define the nurse's role in the donation and transplantation process and the importance of disclosure in this field, we elaborated the present narrative review to discuss the role and responsibilities of the nurse working in an organ and tissue transplantation program. The literature found was read, summarized and organized into five thematic categories, namely: definition of the nurse's role in transplantation, the difference between the nurse practitioner and coordinator, legal and ethical aspects; research and information on transplant nursing and education on transplantation. It is concluded that the nurse needs knowledge about the principles of good practices and have resources available to assess the merits, risks and social issues related to transplantation.En Brasil más de 30.000 pacientes están esperando en fila para la realización de trasplantes de órganos. La complejidad de esta modalidad terapéutica requiere una formación especializada y un equipo permanente de profesionales de salud familiarizados con la atención y el cuidado de los pacientes. En la práctica todos los días, las enfermeras tienen el reto de brindar atención de calidad a los pacientes y familias. Frente a la necesidad de definir el papel de la enfermera en el proceso de donación y trasplante y la importancia de la divulgación en este campo, se ha elaborado esta revisión narrativa destinado a hacer consideraciones sobre el papel y las responsabilidades de la enfermera que trabaja en el programa de trasplante órganos y tejidos. Los textos encontrados fueron leídos, resumidos y organizados en cinco categorías temáticas, a saber: la definición del papel de las enfermeras en el trasplante, la diferencia entre la enfermera de la clínica y el coordinador de trasplantes en enfermería, aspectos éticos y legales, la investigación y la información y la educación en los trasplantes. Se concluye que la enfermera debe tener conocimiento de los principios de buenas prácticas y disponer de recursos para evaluar los méritos, los riesgos y los problemas sociales relacionados con el trasplante.No Brasil, mais de 30.000 pacientes aguardam em fila de espera para a realização de transplantes de órgãos. A complexidade desta modalidade terapêutica exige preparo especializado e constante da equipe de profissionais de saúde envolvidos no cuidado do paciente. No cotidiano da prática, o enfermeiro é desafiado a prover assistência com qualidade aos pacientes e familiares. Frente à necessidade de definir o papel do enfermeiro no processo de doação e transplantes e a relevância de divulgação desta área de atuação, elaborou-se a presente revisão narrativa que teve como objetivo tecer considerações sobre o papel e as responsabilidades do enfermeiro que atua em programa de transplantes de órgãos e tecidos. Os textos encontrados foram lidos, organizados e sintetizados em cinco categorias temáticas, a saber: definição do papel do enfermeiro no transplante, diferença entre o enfermeiro clínico e o enfermeiro coordenador de transplante, aspectos legais e éticos, pesquisa e informação e educação em transplantes. Conclui-se que o enfermeiro deve ter conhecimento dos princípios de boas práticas e ter recursos disponíveis para avaliar o mérito, riscos e questões sociais relacionadas aos transplantes.Universidade de São Paulo Escola de Enfermagem de Ribeirão Preto Departamento de Enfermagem Geral e EspecializadaUniversidade Federal de São Paulo (UNIFESP) Escola Paulista de EnfermagemUniversidade Federal de Santa CatarinaUNIFESP Escola Paulista de Enfermagem Programa de Pós-Graduação em EnfermagemUSP EERP Departamento de Enfermagem Geral e EspecializadaUNIFESP, Escola Paulista de Enfermagem (EPE)UNIFESP, EPE Programa de Pós-Graduação em EnfermagemSciEL

Missing Domains Of Lung Transplant Patient Selection

The goal of consistent, predictable, improved outcomes has continued to elude the scientific community in the thirty years since lung transplantation became the procedure of choice for patients with terminal, non-malignant lung disease. Background: Though there is a consensus regarding disease-specific indications for a lung transplant, ambiguity remains regarding how patient-specific attributes should influence lung transplant candidacy. This project had three aims: 1) to establish the missing domains of the interdisciplinary assessment of the lung transplant candidate, 2) to have these domains validated by an international panel of lung transplant experts, and 3) to recommend the next step for inclusion of these domains into the lung transplant candidate selection process. Methods: Three levels of evidence were reviewed. A search for standards and guidelines, a systematic literature review and a validation of domains by experts were conducted. Results: Seven domains of patient attributes were identified as relevant to lung transplant patient selection: cognitive performance, frailty, psychological factors, self-efficacy, social support, quality of life, and sociodemographic factors. Within each domain, several elements to be incorporated in the process of patient assessment were identified. Conclusions: Assessment of the missing domains and elements should be incorporated into the interdisciplinary lung transplant evaluation process. Standardized recognition and reporting of the patient-specific attributes will inform the work of individual transplant programs and the international transplant community. Further study is needed to better understand how nurses assess lung transplant candidates, how they communicate their findings within interdisciplinary settings, and how those findings relate to transplant outcomes

Trasplante de órganos y tejidos: responsabilidades de las enfermeras

In Brazil, more than 30,000 patients are awaiting organ transplantation. The complexity of this therapeutic treatment requires specialized training and constant involvement from health care providers involved in care for these patients. In everyday practice, nurses are challenged to provide high-quality care to patients and families. In view of the need to define the nurse's role in the donation and transplantation process and the importance of disclosure in this field, we elaborated the present narrative review to discuss the role and responsibilities of the nurse working in an organ and tissue transplantation program. The literature found was read, summarized and organized into five thematic categories, namely: definition of the nurse's role in transplantation, the difference between the nurse practitioner and coordinator, legal and ethical aspects; research and information on transplant nursing and education on transplantation. It is concluded that the nurse needs knowledge about the principles of good practices and have resources available to assess the merits, risks and social issues related to transplantation.En Brasil más de 30.000 pacientes están esperando en fila para la realización de trasplantes de órganos. La complejidad de esta modalidad terapéutica requiere una formación especializada y un equipo permanente de profesionales de salud familiarizados con la atención y el cuidado de los pacientes. En la práctica todos los días, las enfermeras tienen el reto de brindar atención de calidad a los pacientes y familias. Frente a la necesidad de definir el papel de la enfermera en el proceso de donación y trasplante y la importancia de la divulgación en este campo, se ha elaborado esta revisión narrativa destinado a hacer consideraciones sobre el papel y las responsabilidades de la enfermera que trabaja en el programa de trasplante órganos y tejidos. Los textos encontrados fueron leídos, resumidos y organizados en cinco categorías temáticas, a saber: la definición del papel de las enfermeras en el trasplante, la diferencia entre la enfermera de la clínica y el coordinador de trasplantes en enfermería, aspectos éticos y legales, la investigación y la información y la educación en los trasplantes. Se concluye que la enfermera debe tener conocimiento de los principios de buenas prácticas y disponer de recursos para evaluar los méritos, los riesgos y los problemas sociales relacionados con el trasplante.No Brasil, mais de 30.000 pacientes aguardam em fila de espera para a realização de transplantes de órgãos. A complexidade desta modalidade terapêutica exige preparo especializado e constante da equipe de profissionais de saúde envolvidos no cuidado do paciente. No cotidiano da prática, o enfermeiro é desafiado a prover assistência com qualidade aos pacientes e familiares. Frente à necessidade de definir o papel do enfermeiro no processo de doação e transplantes e a relevância de divulgação desta área de atuação, elaborou-se a presente revisão narrativa que teve como objetivo tecer considerações sobre o papel e as responsabilidades do enfermeiro que atua em programa de transplantes de órgãos e tecidos. Os textos encontrados foram lidos, organizados e sintetizados em cinco categorias temáticas, a saber: definição do papel do enfermeiro no transplante, diferença entre o enfermeiro clínico e o enfermeiro coordenador de transplante, aspectos legais e éticos, pesquisa e informação e educação em transplantes. Conclui-se que o enfermeiro deve ter conhecimento dos princípios de boas práticas e ter recursos disponíveis para avaliar o mérito, riscos e questões sociais relacionadas aos transplantes.Universidade de São Paulo Escola de Enfermagem de Ribeirão Preto Departamento de Enfermagem Geral e EspecializadaUniversidade Federal de São Paulo (UNIFESP) Escola Paulista de EnfermagemUniversidade Federal de Santa CatarinaUNIFESP Escola Paulista de Enfermagem Programa de Pós-Graduação em EnfermagemUSP EERP Departamento de Enfermagem Geral e EspecializadaUNIFESP, EPE Programa de Pós-Graduação em EnfermagemSciEL